Piss on Pity

Read this entire article.

Piss on pity!

I am inspired.

Ontario Government Bureaucrats Punish Familes With Disabled Children

My blog, my pet subjects-jihad, politics, sex, religion, fashion, make-up and of course-the disabled, and particularly disabled children because I have a child who is developmentally disabled.

Here is a story that I just read about, and I have been told by a contact at one of Canada's national newspapers that they are planning to write about it.

This is about how a father challenged the arbitrary system of helping families with disabled children in Ontario.

There is a program that helps families with disabled children with their extraordinary expenses.

For those of your without a disabled relative, it's hard to imagine how expensive it can be to keep a disabled relative in the home.

For those dependent on technology for eating, breathing, or speaking, it gets even more expensive and complicated and life becomes form after form, endless paperwork with no inter-agency coordination. It is soul-crushing stuff.

I personally have had the experience of being told that my family made 'too much money' to be helped by our socialized system.

I had heard a rumour that this was an arbitrary determination, and heard of one family that had previously, succesfully sued the government to get 24 hour nursing support for a disabled child.

I was actually given an income table by a government worker assigned to "help" us.

The income table determined that we had too much income to need things like g-tube formula for my son which costs about $1500 per month.

Imagine my delight to find out that it was totally bullshit. They made up the guideline numbers-it's not the law.

Basically, these mandarins have been arbitrarily playing G-d with families, making decisions about who can get help according to their own whims.

I believe this story has legs, and that more families like mine will pursue the government for what they are entitled to for their disabled relatives.

Welcome to the socialized medical system, where bean counters make decisions that affect the quality of your life on a daily basis, based on ZERO expertise, and ZERO legislation. Isn't that comforting? They just made stuff up as they went along.

Awesome!

Dad creates app for disabled daughter.

Way to go, daddy-o!

Two Years Worth Every Tear

The world of parenting a special needs child is an interesting place.

You are a parent, a therapist, a coach, a spiritual guide and nurse all in one.

You find yourself dividing the world into groups-as we humans often do-people who 'get' the vulnerability of the disabled, and people who don't.

Not surprisingly, I find the most support for the value and dignity of disabled lives on the right of the political and religious spectrum.

I believe that many, if not most leftists loathe disabled people and would be happy if they were all aborted before birth.

I try to keep plodding along, one step at a time with my special needs child. Some days are harder than others.

We all have our moments.

Here is a nice article celebrating the life of a disabled child-and seeing every day as a victory.

The Battle for Educational Inclusion in Britain

This was an interesting read.

My own opinion about inclusion is that it always has to benefit the disabled person.

It really makes me sick when people or institutions brag about their inclusion programs, when really-it is just something that they do to make themselves feel good.

The more higher functioning cognitively the disabled person is-the more inclusion opportunities they will have.

That doesn't mean that more severely disabled people should not be 'included', but I think parents and family members always have to be realistic about the extent to which that is feasible-and how much the disabled person is getting out of it.

How A Disabled Boy Learned to Fly

A beautiful story. Read it all.

Creeps Deface Pictures of Down Syndrome Kids

Obviously, there are some disgusting excuses for human beings who thought it was absolutely hilarious to deface pictures of retarded children.

I hope they all rot.

Here are a few thoughts on the matter from the mother of a child with Down Syndrome, from a Catholic perspective.

Her comments are easily translatable to other syndromes and other special needs-her words are my thoughts, too.

"This attack was also painful because of the callous lack of understanding of what these photos stand for. Accomplishments in this particular world are hard won. They represent hours of sleepless nights rocking babies who struggle to breathe during bouts of pneumonia and other respiratory infections. They represent long hospital stays, emergency room visits, and anxious hours spent in surgery waiting rooms. They represent days, months, and years of physical, occupational and speech therapy, conferences with school officials, and the effort to make others understand these children’s unique gifts."

" Even the simplest everyday activities can be a real triumph for children and parents. The amount of love, suffering, pain, and prayers that go into the moments captured in the posters is probably more than many people go through in a lifetime. These children overcome circumstances and adversities that would overwhelm most adults."

"But after seeing the online ridicule of Down Syndrome children, I wonder whether the deepest sorrow that pierced Mary’s heart was not the physical suffering of her son, but the cruel taunts and mockery to which he was subjected. It must have been bewildering to her that his tormentors could not see that all the life and goodness, truth and beauty in her Son."

Of course our children are not messiahs. But a Holy Cross Priest at Notre Dame reminded us last week that those of us who care for individuals with cognitive handicaps stand on holy ground. Knowing a child with Down Syndrome is like getting a small glimpse of the divine; original sin has been cleansed by baptism, and their souls are barely touched by actual sin. And that’s why we feel that when they are shown disrespect, something innocent and holy and sacred has been profaned."

This is a beautiful article-and I completely agree with the writer.

11 Year Old Disabled Girl to Be Sterilized

I've got very mixed feelings about this story.

If this procedure prevents debilitating seizures then I would be inclined to go with the parent's view. But I am very, very concerned about drastic medical interventions on disabled people with respect to issues of sexuality in particular.

Give Up on My Child? Never.

Thanks to Square Mile Wife for finding this excellent article.

I salute this lioness mom.